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Fixing the underrepresentation of BAME participants in medical research

5/1/2022

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Cross-posted from RACE.ED

​It has been widely reported that the COVID-19 pandemic has disproportionately impacted Black and Ethnic Minority (BAME) communities across the UK, which have suffered higher rates of hospitalisation and mortality. While the causes of this outsized impact are yet to be fully untangled, it is consistent with longstanding disparities in health outcomes and access to medical treatment between BAME communities and the white majority. The pandemic has, in effect, brought pre-existing health inequities to the fore.

With all our hopes for overcoming the pandemic resting on the success of our vaccination programme, it is essential that the jabs being put into arms have been shown to be safe and effective for people across the entire spectrum of our ethnically diverse population.
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This is important for two reasons. First, medical treatments can have varying effects for people of different ethnic backgrounds, and hence it is essential that clinical trials include volunteers that are representative of the different groups that make up our population. Second, people from BAME backgrounds deserve the same opportunity to build trust in vaccines. This means knowing that vaccines have been rigorously tested on volunteers from their own communities, as well as other groups.

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The hazard of ascribing and spatialising identity narratives

28/7/2021

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Image taken 25 October 2016 during field research concerning Moken land rights in Phang Nga, Thailand. The sign reads, ‘Moklen's sacred land for ceremony of ancestor’.
Our identities reflect our relationships with places and spaces. The changing contexts of these relationships also impact, shift and mould our identities. In our Identities article, ‘Hybrid identities: juxtaposing multiple identities against the ‘authentic’ Moken,’ we explore Moken[i] communities living in coastal areas of Thailand, and the Indian Ocean tsunami of 2004. We also spotlight ascriptions of Moken identities as vulnerable, overwhelmingly linked to the sea and with limited opportunities for agency over their livelihoods.

In challenging these ascriptions through our ethnographic research, we found myriad examples of agency with various beliefs, settlement patterns and usage of the sea. The communities we spoke to explained shifting identities, across and between physical spaces of settlement, but also among traditional practices and aspirations for younger generations.
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That our identities shift and flux is a position made overwhelmingly clear during the past year when the spread of COVID-19 has significantly changed our capacity to relate to different places and spaces. Our experiences of this past year have been contingent on national contexts and structural inequalities, as well as long-held assumptions about certain cultural identities.

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